The diagnosis of congenital heat disease (CHD) can be difficult. Below are examples of some of the people and resources here to help you and your child along this journey.

For more information on the support resources available to you: www.cincinnatichildrens.org/patients/resources

Serve as a resource for parents with child development and hospital issues, and can provide toys and activities.

Help you cope and solve problems in your everyday life. Your life outside the hospital doesn’t stop when your child is in the hospital.

A one-stop location for more information on your child’s disease and for help to navigate the hospital and the city.

Provides hope and support to children, patients, and families affected by CHD.

Provides support for moms of newly-diagnosed babies with Hypoplastic Left Heart Syndrome and other single ventricle hearts.

A group of patients, parents and providers who work together to provide one voice for those with congenital heart disease. Their work focuses on education, research and advocacy.

If you need help contacting any of these groups, talk to your doctor, nurse, or social worker to connect with these great organizations.