Taking breaks is crucial, even for just an hour. Ask a family member, friend, or health aide to stay with your child. Once you’re away, that time is yours, so don’t feel guilty about how you spend it.
As the caregiver of a child with heart disease, it can feel like the whole world is on your shoulders. That’s why you need to spend time taking care of yourself.
These tips might seem easier said than done at first, but we encourage you to try them. Remember the simple air-safety rule - you need to put on your own oxygen mask before helping your child.
It’s no surprise that living on coffee and hospital leftovers can leave you feeling tired and run down. Carry nutritious snacks, like fruit, granola bars, sandwiches, or nuts. If friends offer to bring you meals, say “yes”!
Most people find that exercise helps clear the mind, boost energy levels, and improve sleep. Even 10 minutes can do the trick
Your friends and family likely want to help you, but might not be sure about what you need. If someone says, “If there’s anything I can do…” and there is, say “yes”!
Ask your child’s doctor, nurse, or social worker for information on support groups or online support related to congenital heart disease.
Your child is sick — of course you have feelings of anger and frustration. Does this make you a bad parent? No, it makes you human. Accept that no matter how much energy you invest in your child, you can never be completely in control of their health and happiness.
It’s a state of exhaustion, both physical and emotional. Talk to your doctor or your child’s cardiologist if you are feeling this way.
Remember that you are not superhuman. You’re a parent doing your best. So give your child your time, encouragement, attention, and unconditional love. Just be sure to save a little bit for yourself.